I am happy to report that the long absence has been because all has been going well, and we've been filling our time with other things...
Here's an overview of what we've been doing the last 10 months or so...
Unfortunately, within days of Halloween you got sick with a fever. So off we went to clinic for the usual CBC, blood cultures, IV fluids, and IV antibiotics. Much to our surprise your ANC was only around 300, and we were admitted. Luckily, after much persistence on my part, we were able to bring you home on IV antibiotics after only 2 nights in the hospital. The plan was to continue the IV antibiotic every 8 hours around the clock until your counts came back up. I thought it'd only be a couple days...it ended up being 3 1/2 weeks!! It was so hard on you to be cooped up, missing preschool, tumbling, and friends. We endured, however, but didn't take many pictures during this time because mom was sleep deprived and you were not a willing subject. So this is about all we have of that time frame...
Whenever your counts were low like this Home Health would come out weekly for blood draws to check your CBC. Well, during this time your Hct and Hgb levels were very low, but just barely hovering above transfusion levels, so we decided to see if they would come up on their own. Finally, after about 3 weeks, I insisted on a transfusion. It was the day before Thanksgiving and I was tired of watching you suffer with headaches and fatigue. YAY for blood! You were a whole new kid after that and seemed back to your old self. Within minutes your cheeks got rosy and you had a smile on your face and energy in your body! It was only a few days later that your ANC finally rose enough to quit taking the IV antibiotic at home and things were looking up!! I am SO GRATEFUL to the many people who take the time to donate blood...it has saved your life many times. THANK YOU DONORS!
|Energy in a bag.|
|That little tube of blood was a welcome sight! And this |
proved to be your last transfusion ever!
|This is what happens when your blood levels are up!|
|Temple Square at Christmas time is the best!|
|Christmas Eve PJ's! Notice your pj's have a|
"One Tough Chick" on them...
|Our favorite PA...Robert! January Clinic visit.|
|February Clinic...look how long your hair is getting!|
The cape says "U R Super". :)
This experience really made me realize that I am not in control. There is only so much I can do to help you. It made me realize that cancer stinks and that were not "safe" even with a 96% cure rate. Were not safe until we reach 100%. I decided to do the only thing I could do. Pray. I pray everyday that I will have the strength to deal with whatever lay ahead, and I give thanks for where we are and where we've come from. I'm so grateful for the gospel that helps get me through the tough times. Its comforting to know I can receive peace in my trials, and I have. I am grateful for the Priesthood power on earth. The many blessings that have brought you (and me) comfort and peace. We really are so blessed!!
In an effort to help relieve the helpless feelings I was having I decided to DO something. I organized a HUGE yard sale for CureSearch and raised over $2,300! I couldn't believe all the donations we got. We had clothes, furniture, electronics, exercise equipment, lawn mowers, and other yard care stuff, housewares and a ridiculous amount of toys! The yard sale spread over several yards and was enormous!! It was so neat to raise money and feel like I was fighting back against childhood cancer by helping fund research! We even had a few vendors who held booths at the yard sale. We sold donated baked yumminess, and you even had your own table where you sold home made "Cancer Sucks" suckers! In fact, the day was such a huge success that I had no time to take pictures! I cant believe that after all that work I didn't get a single picture of the day! Oh well, in the end, it was so much fun and I think we are going to make it an annual event!
Spring had sprung and we had some exciting things happening...
|First day of preschool! (had to add this so I could |
compare with the one below!)
|Preschool graduates!! I cant believe how much you've grown!|
|Mrs Vicki was heaven sent, and you earned that diploma! |
|We also took a trip to see the "giant heads" as you called |
them, but to most people its known as Mt Rushmore. You guys
were so excited for this trip, and when it was over your favorite
part was the pools and splash pad where we stayed!! :)
|Walking to the parade with your BFF's. Notice you took |
a bag...wanted to make sure you could get all the candy
you catch from the parade floats home.
|"Really mom? Do you have to keep taking pictures??" Our |
good friends let us congregate in their front yard every year
since their house is on the parade route. Lucky us!!
|Proud to be an American!|
|We set up a little kiddie pool for the little cousins to play |
in while we BBQ'd and apparently T couldn't wait to cool off!
Who knew a little pool could be so entertaining!
|West Point has THE BEST fireworks!|
|Dads are the best place to lay while watching fireworks...|
I cant believe I started this post over a year ago, and never posted it!! SO many wonderful things have happened! We'll catch up in the next few posts!