|The sunrise from our back deck.|
|One Tough Chick shirt. (why cant i rotate these?)|
|You trying on a mask in the "monster faces" book.|
|We could barely hear the docs, Tuck was so noisy!|
|Watching Shrek the Third.. a good |
distraction cause you were anxious to
get it over with.
You woke up really funny. They came and got me to help them wake you cause you were struggling a little. You were OUT! I rubbed your back, talked to you, and offered you chips...you didnt budge. I kept at it, then the nurse tried to take your temp, and you shot straight up in bed and smiled at me. You said, in a very slurred voice, that you wanted to sit up so the nurse lifted up the head of the bed. We were asking you questions and you were moving really funny. You finally picked what kind of chips you wanted, but had a hard time eating. Me and dad couldnt stop laughing...you were so funny. I took some video of it.
Once we were ok'd to leave we headed back up to clinic so we could get your chemo. You got Anzemet first, which is an anti-nausea drug they give to keep you from getting sick. You got Doxorubicin next, which is the reason they give the anti-nausea medicine. That took about 15-20 minutes. Then you got the Vincristine. Which only takes about a minute through your port. Each medicine doesnt take long to get, but by the time they get it, and set it up and actually administer it....we didnt leave the clinic till 1pm. Needless to say we were all exhausted...you said you wanted to hurry home and have breakfast. You wanted some Frosted Mini Wheats "so bad". Dad and I were happy to oblige.
|Getting Anzemet, and snuggling |
|Getting Doxorubicin. Notice the plastic around |
the chemo, its light sensitive.
|Getting the sticker taken off your port access.|
You HATE this part, but look at you be so brave anyway!
|Stickers off! just need to unplug and then we |
can go home...Yeah!
I am always amazed at the hospital staff and the way they run things. They have Rachelle (your favorite "nurse") who is a Child-Life Specialist. Her whole job is to help kids cope with whats going on. Whether its keeping them distracted with games and toys, or calming them down and validating their feelings, or empowering them by giving them choices. You quickly fell in love with her and knew she was on your team. You always look forward to seeing her. The nurses are amazing too. They have a way of being caring, and also tough. They always ask how our WHOLE family is doing, and how everyone is coping. And theyre genuine. I dont know how they do it, but Im grateful they do!
|Rachelle, the "toy nurse"|
We ended the day with your first dose of steroids and prevacid, and you were nervous, but you did great. Your always nervous to try a new medicine, but you never cease to amaze me. You are so brave and trusting, and patient, and I love you so so much...I dont know how you do it.